www.imdsa.org I have spent my life looking for others like me with children like mine and I can't believe I've actually found a site that is dedicated to this condition. It seems to be pretty new in retrospect to how long I have been looking as the site doesn't seem to have too large a mass of data. I did reach out to the president of the site for more information and ways in which involvement for those of us with mosaic children. Attached is the site. Check it out!